12:45AM. Katie went to bed a little after midnight, but we had to call the visiting nurse and leave a message. My sweet, darling baby girl has developed a rash on her neck, underarms, belly, and along the length of the incision on her chest. She said her neck had been itching for about a day, but she thought it was from where they’d had the tape on the IV in her neck. However, the IV has been out since Friday, and the rash from it had almost disappeared. The new rash had started, but she didn’t realize it wasn’t the same one…just thought it was coming back.
This new rash is on either side of her neck. She is allergic to the tape that’s used for bandaging, etc, and she still has some strips of it on her belly where the chest tube had been. The hospital told her to leave the strips on and they’d fall off by themselves. I think she’s having a reaction to it, even though she says it’s not itching near or under the bandaging strips.
I’ll go out in the morning and get her some Benadryl for the rash. I hope the nurse calls me back early enough in the morning so I’ll have an idea of what to do…as in take off the five or six band-aid strips, take her to the doctor, take her to the ER, etc. The rash is not bright red or bumpy, but it’s heading that way. I feel so useless and stupid.
I have my cell phone right with me, the portable house phone is with my cell phone, and I’ve turned my air conditioner off so I’ll be able to hear either one if/when it rings.
Before I go to sleep….to get in the few hours that I can, since it’s now 1AM and her pain medicine will be wearing off in 3 hours….I’m going to go in her room and check on her breathing, etc. I hope we don’t have to make an ER visit tonight. My poor baby has been through enough. I can’t wait until all this is behind her and she’ll be able to tell how much the new valve was worth all this.
Good night….I think…..
Til later…..
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